What "Heart Day" means to me

Happy Valenintine’s Day
In November of 2001 I gave birth to my oldest son Matthew, who is now 7 years old. He was a beautiful baby boy with a full head of dark brown hair. All was well, and in an instant I was  this sweet little boys Mom. Soon we realized our son was struggling, trying not to worry we hoped for the best.
About 12 hours after my sweet little Matthew was born we found out he had one of the worst heart defects you can be born with. He was born with Hypoplastic Left Heart Syndrome (HLHS), or in other words he was missing the whole left side of his heart. In an instant my world was turned upside down. We had three choices,
  • 1. Let him peacefully pass away in our arms, and spare him a long road of surgery’s, and hospital stays.
  • 2. A heart transplant, which he would most likely never get in time.
  • 3. Open heart surgery’s (at least 3 and a hand full of other corrective surgery’s). The first one he would need with in days and he only had a 25% chance of surviving.
We decided to give our son a chance at life, no matter what the odds were. We knew we had to try to repair his tiny heart and give him a chance at life. So off to Seattle Children’s Hospital we went. In three years my son had 3 major open heart surgery’s, and 11 other corrective surgery’s. Those three years were filled with moments of total despair. At times the challenges seems more than I could handle. But they were also filled with gratitude, joy, and on over whelming love for my tiny son. Matthew was in the hospital for weeks even months at a time. I had to rely on the knowledge of Doctors and Nurses to give my son the critical care he needed to live. I also had to rely on the kindness of other “heart moms”, who gave me support and love in those difficult times. I was humbled by the kindness of others I made a promise to myself that I would try to give back as a way to say thank you.
Some have asked me why I take the time out of my busy day to write this blog? I know that some of you out there are struggling, I know what if feels like to be over whelmed with the burdens of everyday life. So this is my way of helping you, Let me teach you another way to provide the basics for your family. When I get an email telling me I have helped someone, what a joy! This is my way of saying thank you …..SO Happy Heart Day!
With a heart full of gratitude!


8 Responses

  1. Thank you for sharing your story.

  2. wow, what a great post. thanks for writing about it!

  3. Thank you.

  4. What a handsome young man!!!!! Thank you for sharing your story!!!! I have been to Seattle’s childrens hospital with my great niece who spent months there and my grandson who has to go every so often because of his CMV. They are a wonderful hospital.
    Are you still in this area?

  5. We live in Idaho, but we do not have Doctors in this area that can treat my son. We have been in Seattle, Arizona, and Utah all to have work done on his heart. Thanks for your comments.

  6. Sarah,

    I stumbled on your blog looking for coupon tips..but, I’m a heart mom too!

    Your coupon tips are GREAT and your son is handsome as EVER!

    Happy Heart day to you and your family!


  7. Hi Sarah,
    Thanks for your story about your son. I too have a son that was born with a congenital heart defect. He was born with what is called: “Tetralogy of Fallot, or blue baby syndrome.” My son has also had two open-heart surgeries and many corrective surgeries. I understand how it feels to look at a beautiful little boy in your arms who looks perfect and find out that he has something terribly wrong with him and that without surgery he will not live. It is a very devastating moment. I must say, that when you are at your darkest moment in life, God is always there and he is waiting to show us his power! I thank God for my son, Alexander who has taught me so many important lessons about life since he was born. I have never looked at material possessions the way I use to since he was born and I am thankful for everyday I have with him. Alexander is doing wonderful. He just turned 16 and loves life. I appreciate your story about your son and I know God is always there watching him. God Bless you.

  8. I have tears in my eyes. I’m glad you have been so blessed. And I thank you for blessing my life!

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